Friday, October 8, 2010

Does Leukemia have an awareness color??

Leslie here!! What's up blog readers?? It's FRIDAY!! Let's celebrate!!! :)

So I have a question. DOES our dreaded Leukemia/blood cancer have a color? Like the Susan G. Komen pink for breast cancer awareness that's everywhere?? I mean, I have to say, KUDOS to that campaign...honestly, I see the pink EVERYWHERE!!! The NFL is even wearing it!! It's on our food packaging, on our televisions, on vehicles, it's at the bank, it's all over the internet, it's on television sitcoms, it's on pretty much every piece of massly consumed product you can imagine...and I think it's safe to say...the campaign has worked. Don't we all see that pink and immediately know what's up? THAT is a successful awareness campaign. So...then of course it brings to MY mind..."but what about Leukemia?" "What about T-PLL?" Do we have a color? How many people even actually know that Leukemia is actually a blood cancer and not a tumor cancer? How many of you were already aware of that before our beloved Mark got sick? I know there are many medical professionals that read this blog (my mom is an ER tech at Botsford Hospital in Detroit, and her and her medical-type friends read and talk about this blog a lot at work), so I know you guys and gals of course already knew that Leukemia is a blood cancer, but those of you out there that had really only heard the word "Leukemia" before, did you know already that it was actually cancer of the blood and bone marrow? I'm curious. I personally have this drive and need to want to educate people on this disease, and I feel like more can be done to drive awareness about this illness so that maybe...just maybe...more research can be done about this cancer and maybe...just maybe...one day...we make even more progress towards a cure.

I've already emailed the Leukemia & Lymphoma Society to ask if there's an awareness color, and I'll let ya know what they say. In the meantime, (and I mentioned this in my previous entry), I wanted to more sufficiently explain our awesome "Top Blog of 2010" award. The award was given to various people who have blogs about various medical conditions. There were a handful of awards given to the top Leukemia blogs of 2010, (you can see the nifty "award seal" on the home page of this blog), and I wanted to say "thank you" to the Medical Billing & Coding Organization for the honor. "Curing Vancura" is listed amongst many other blogs about Leukemia, all that outline their own personal journeys through this horrid disease. But what I like most about getting the award, is that it helps with the awareness thing that I've been internally obsessed with since the word "Leukemia" was uttered to us back on Jan. 8, 2010.

I have this need to talk about what happened to my man. I have this desire to tell people exactly what happened and to let them know that if it's happening to them or to someone that they love, not to freak out too much, that things can be done. To trust their doctors enough, but no so much that you're afraid to ask questions. That it's okay to challenge them, it's okay to make them show you exactly what's happening if you're confused. To be brave. I just want to offer a place to go, and a bit of knowledge and hopefully solace to those that are panicking, those that are living in a constant state of fear, those that feel alone. Mark and I both do. He's already talked to a few different people via email and via telephone that have stumbled upon our blog, because they're going through the same thing, and through that, WE can find our peace too because we now find ourselves in the position of support givers because we've been through it (and are truthfully still going through it). And let me tell you, there were many nights in 2010 that I wasn't sure we'd ever get here. Now that we are, I can feel this passion building in me, in us...that we're supposed to reach out and offer up our support and our knowledge and experience and to be advocates. How could we not? After the incredible support bestowed upon both of us, both Mark and I feel an intense need to give back.

At any rate, Mark's still got a ways to go. His white count is still low, but he's so happy and healthy. The (now quarterly I believe), bone marrow biopsy that he gets has been turning up with "zero sign of leukemia", and as long as that stays like that, we're both happy. Now just crossing our fingers for a healthier white count. Of course will keep you all posted on that progress.

In the meantime, check out the list of blogs that we are honored to be mentioned with. I kind of scrolled down looking for "Curing Vancura" and got a lovely sense of pride when I saw it amongst the list. Here's the website: CLICK HERE

And if anyone knows the answer to my question about Leukemia's awareness color...give me a shout...leave a comment.

Love to you all.

-Leslie
(and Mark)

11 comments:

  1. Mark`s dad here.I think the color ORANGE should be considered because AWARENESS!!!! thank you.

    ReplyDelete
  2. Leslie here: You ARE correct!! It IS orange!! Check out their FB page: http://preview.tinyurl.com/LEUKEMIA-AWARENESS-FB-PAGE

    And there is 1 week, in Feb, dedicated as Leukemia Awareness Week. It's Feb. 1-Feb. 6. Aaaand...I've just received the following email response from the Leukemia & Lymphoma Society:

    Dear Ms. Kerrigan,



    Thank you for contacting the Information Resource Center (IRC) at The Leukemia & Lymphoma Society (LLS) through your recent e-mail.



    We are not aware of an "official" color for leukemia/lymphoma/myeloma. However, LLS has developed a tri-color, awareness pin in the shape of a ribbon to represent blood cancers including lymphoma, leukemia and myeloma. In our pin the diseases are represented with the color blue for myeloma, yellow for lymphoma, and green for leukemia. These pins are available through the local chapters.



    To find your local chapter online, click here: http://www.lls.org

    Enter your zip code at the top right hand corner of your screen and press "Chapter Finder".



    If you have further questions please call us at our Home Office in New York at 1-800-955-4572 between the hours of 9am and 6pm EST and an Information Specialist will be able to assist you.



    Thank you for your support!


    Sincerely,


    :: Erica Cortes | Bilingual Project Coordinator, Information Resource Center

    :: The Leukemia & Lymphoma Society | 1311 Mamaroneck Avenue, White Plains NY, 10605
    :: P: 914.821.8807| F: 914.821.3607|8807| www.lls.org| erica.cortes@lls.org

    :: Information Resource Center: 1-800-955-4572

    ReplyDelete
  3. Hеya i am fοr the fiгst time heгe.
    I came across thіs board and I find It truly helpful & it helρed me out muсh.
    I'm hoping to present something back and help others such as you helped me.

    Here is my site; pikavippi
    Feel free to visit my weblog ; pikavippi

    ReplyDelete
  4. It's really a cool and useful piece of information. I'm satisfied thаt you just shаred this helpful іnfo with us.
    Pleаѕe stау us up to dаte lіke this.

    Thanκ yοu foг shаring.


    my blog рost 100000 twitter followers
    Also visit my website gain more twitter followers

    ReplyDelete
  5. It's truly very difficult in this full of activity life to listen news on Television, so I just use world wide web for that reason, and obtain the newest information.

    My homepage - vapornine
    Have a look at my web-site - vapornine

    ReplyDelete
  6. It's amazing to visit this web site and reading the views of all friends about this post, while I am also keen of getting familiarity.

    Also visit my blog get followers
    my web page > get followers

    ReplyDelete
  7. Yes! Finally someone writes about get more followerd.


    my web-site get twitter followers fast

    ReplyDelete
  8. I loved as much as you will receive carried out right here.
    The sketch is tasteful, your authored subject matter stylish.
    nonetheless, you command get bought an impatience over that you wish be delivering
    the following. unwell unquestionably come further formerly
    again as exactly the same nearly very often inside case you shield
    this hike.

    My blog post; get followers

    ReplyDelete
  9. Its like you read my mind! You seem to know a lot about this,
    like you wrote the book in it or something.
    I think that you could do with some pics to drive the
    message home a little bit, but instead of that, this
    is fantastic blog. A fantastic read. I'll certainly be back.

    my webpage get followers

    ReplyDelete
  10. Fаntаstic bеat ! I ωish tο аpprentіce whilst you аmеnd уouг sіte, how could
    i subscribе for а ωeblog wеbsіte?
    Thе aсcοunt aiԁed mе a applісable deal.
    Ι hаvе bееn a little bit аcquainted of thiѕ your brоаdcast offerеd vibrant сleaг
    idеa

    Also νisit my ωeb-site DiamondLinks.net Review

    ReplyDelete
  11. When I originally commented I clicked the "Notify me when new comments are added" checkbox and now each time a comment
    is addeed I get four emails with the same comment.
    Is there any way you can remove people from that service?
    Bless you!

    My web-site: autism awareness bracelets bulk

    ReplyDelete